Age of Child with growth disorder *

Age of Child with growth disorder

0-2 years old

3-5 years old

6-12 years old

13-18 years old

19+ years old

Diagnosis *

Child's growth diagnosis

Growth Hormone Deficient

Turner Syndrome

Noonan Syndrome

Idiopatic Short Stature

Other

Age of Diagnosis *

Child's age at diagnosis

Less than 6 months old

6 months to 1 year old

1-3 years old

More than 3 years old

Was the diagnosis made by a primary care doctor, specialist, or other?

Was the diagnosis made by a primary care doctor, specialist, or other?

Primary Care Doctor

Specialist

Other

On a scale of 1 to 5, how would you rate the quality of the diagnosis process?

On a scale of 1 to 5, how would you rate the quality of the diagnosis process? 5 is the best, 1 is the worst

1

2

3

4

5

How long did it take to receive a diagnosis after first seeking medical attention?

How long did it take to receive a diagnosis after first seeking medical attention?

Less than 1 month

1-6 months

6 months to 1 year

More thank 1 year

Do you feel that the healthcare professionals involved had sufficient knowledge about the disorder?

Do you feel that the healthcare professionals involved had sufficient knowledge about the disorder?

Yes

No

What challenges have you experienced in accessing care for your child?

(Check all that apply)

Lack of knowledgeable specialists

Financial barriers

Difficulty accessing medication

Limited treatment options

Geographic distance to care facilities

Lack of information about innovative or new treatment

Access to care and support for mental health / impact on wider life

Lack of recognition of the impact the condition has on our/my child’s life

Lack of practical support