Global Endocrine Network
The global community is home to numerous distinguished endocrine medical societies and patient support organizations, each dedicated to addressing the needs of those with rare endocrine conditions. Recognizing the power of collaboration, ICOSEP is committed to establishing a robust communication network that unites these endocrine-focused groups, fostering enhanced patient care and support.
We invite qualifying organizations to join our network at no cost. Each member organization is requested to designate a primary contact who will be responsible for maintaining communication with ICOSEP. This representative will receive updates on ongoing initiatives, our newsletter, and materials related to Growth Awareness Day. Furthermore, participating groups will be organized and connected based on their geographical locations through our Medical or Patient Groups pages. We kindly ask that partners engage your members and online platforms by promoting Children's Growth Awareness Day each year on September 20th. If you have any inquiries or wish to establish further communication, please feel free to reach out to us at contactus@icosep.org.
Quality of Care Survey
We are interested in knowing more of what we can do to help you as a patient/caregiver. Click here to participate in the Quality of Care Survey.
About ICOSEP
Learn about our vision, mission, what we do, and how we do it. Click the icon above for more information on ICOSEP!
Global Role
ICOSEP provides a global network system for endocrine medical societies and patient organizations to communicate. Click the icon above to learn more about this collaboration and to find medical societies and patient support groups in your area.
Current Projects
Click the icon above for a list of publications and projects that ICOSEP members are working on. Our voluntary, unified voice, works to better the healthcare opportunities for all endocrine patients.
Endocrine Issues & Growth
Endocrine disorders can significantly impact growth and development. When these hormonal imbalances occur, they can lead to growth disorders, affecting an individual's height, weight, and overall physical maturation. Early diagnosis and appropriate intervention are crucial to mitigating the long-term consequences of endocrine disorders on growth and ensuring optimal health outcomes.