Webinars
The Changing Landscape of Achondroplasia (Part 1 of 2)
Leading experts and patient advocates explore the evolving future of achondroplasia care through both clinical expertise and lived experience. Topics include early diagnosis, multidisciplinary care, psychosocial support, emerging treatments such as vosoritide, and practical guidance for families navigating each stage of life. This session highlights the importance of collaboration between healthcare providers, advocacy organizations, and families to support informed, empowered care for individuals with achondroplasia worldwide.
Turner Syndrome During the Lifespan: What We Know Now & What’s Changing?
In recognition of Turner Syndrome Awareness Month, this educational webinar explores the latest knowledge, research, and evolving perspectives in Turner syndrome care. Professor Claus Gravholt discusses current approaches to diagnosis, management, and lifelong care across childhood and adulthood, while highlighting important developments shaping the future of Turner syndrome care. This session provides valuable insights for patients, families, advocates, healthcare professionals, and anyone seeking to better understand Turner syndrome.
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