Patient Groups unite in ICOSEP.
We encourage all endocrine related patient groups to join our network. There is no fee. The only ask of groups is that you join your voice to our annual Children’s Growth Awareness effort. We provide materials to share easily.
If you are experiencing access to endocrine care in your area, please send us an email with the details of what is happening and who the contact person(s) is to make change happen.
If have a group which we do not have listed or you are interested in building a group in your country, this basic guide may be helpful. To include your organization as a member or contact us, email: email@example.com.
Click here for a a Global listing of medical groups and facilities specializing in endocrinology.
Abbreviations of some of the Groups of Medical Conditions Listed Below
AG=All Growth Conditions
AI= Adrenal Insufficiency ACHON= Achondroplasia CAH= Congenital Adrenal Hyperplasia
GHD= Growth Hormone Deficiency ISS= Idiopathic Short Stature IGFD=Insulin like Growth Factor Deficiency
MAS= McCune ALbright Syndrome ONH= Optic Nerve Hypoplasia PAN=Panhypopituitarism
RSS/SRS= Russell Silver Syndrome also known as Silver Russell Syndrome
SGA= Small for Gestational Age SOD– Septo Optic Dysplasia TS=Turner Syndrome