Patient Groups are so important to ICOSEP.

We encourage any patient group to join and share the importance of good growth. If you know of an organization which is not listed, please contact us and let us know: contactus@icosep.org. Also, if you are interested in building a group or organization in your country, this basic guide may be helpful.

Click here for a Global listing of medical groups and facilities who specialize in endocrinology.

COUNTRY

Patient Groups/ Associations

Social Media  facebook-icon_thumb yahoo-icon
or click to see our You Tube Channel of Online Videos


argentina-flag-
Argentina
Williams Syndrome TS,Klinefelt, Sandberg Syn
australia_flagAustralia
CAH  
TS
SSPA
PIT

WS
PAN 
THY    
SRS / SGA/  RSS
AG    
SOD/ONH
Austria
 TS  
belgiumbBelgium
RSS (SRS) 
TS
 
Bosnia & Herzegovina
AG (email contactus@icosep.org for details)  
Brazil Brazil
  RSS (also known as Silver Russell Syndrome)
bulgariaBulgaria
AG  TS
Cameroon
  AG
canadaCanada
GHD    
TS

 

 

 

 

 

 

 

 

 

ACH (Ontario)
WS

GHD-English
Adults-English
AG-French
RSS-SGA (French) Private
RSS-SGA (French) Public     TS
chili Chile
  SOD/ONH/PAN/de Morsiers ;
China
 GHD ONH
Columbia
TS   TS  
Czech_RepublicCzech
WMS  
denmark flagDenmark
PIT

 

 

 

 

 

 

 

 

 

TS 

SGA  
TS
netherlandsDutch /Netherlands
CAH
AI
(Addisons)
NS 
PIT
SGA
GH
TS
PIT 1
PIT 2
Ecuador
   TS
uk_flagEngland
CAH  
GHD/RSS and ORD  
NS  
TS
PAN
Restricted Growth (RG)   
Addisons
GHD  
SOD #1  
SOD (#2)  RG
Finland
TS  TS
franceFrance
AG 
SRS /SGA  
ORD
TS
Grandir
AG
SRS (Alice)
SRS Assoc 
germanyGermany
RSS/SGA/ACH
WMS   
Skeletal  
TS
SRS (RSS)
ORD
greek-flagGreece
AG AG  
guatemalaGuatemala
  AG
AG2
Holland

 

TS

 
Hungary
 TS TS
India
AG

 

 

 

 

 

 

 

 

 

ORD-diabetes

AG
irelandIreland
TS 
Genetics 
ORD
ACH 
Addisons    
CAH   

 

 

 

 

 

 

 

 

 

CAH  
SOD
israel smIsrael
 AG AG
italyItaly
SOD 
SRS
NS  
GHD 
TS
PAN
SGA
 
ORD 
General 
ACHRO
SOD 
SRS(1) 
SRS(2)
AFADOC-LinkedIn: https://www.linkedin.com/in/afadoc/Facebook YouTube 
Twitter
japan Japan

TSS-Growth 
Pituitary    
SRS/RSS

ASrid-GAD

ASrid-GAD (Facebook)

ASrid-GAD (Twitter)

ASrid-GAD (Instagram)

Kenya
  All Growth
latvia1 Latvia
General  
Lithuania
 TS  TS
mascedonia Macedonia
AG GH
mexico-flagMexico
  TS  
netherlands-flag11Netherlands
ORD  
AI
WMS 
TS  
 
new_zealand New Zealand
 ACH  RSS/SGA
Norway Norway
WMS

 

 

 

 

 

 

 

 

 

TS 

 SGA
pakistan-flagPakistan
  CAH
poland Poland
TS AG  
TS   
RSS/SRS
portugalPortugal
   
RomaniaFlag_0 Romania
 Prader Willi Genetics  PW
russian_flagRussia
   
Serbian-FlagSerbia
 GHD  Rare AG  
GEN
slovakiaSlovakia
WMS 1  
WMS 2
 
sloveniaSlovenia
ORD  
THY
 
south-african-flag-largeSouth Africa
 Rare

Pituitary Community

Deaf Awareness Association of Faso (A.S.C.F)  (pending verification)

 
spain Spain
 TS 
ACHRO 
AG
Addison
NSRSS (yahoo)
RSS SRS (facebook) Addison
Sweden
 NS 
All Growth
 SGA
Switzerland-flagSwitzerland
NS
TS
 
Taiwan
RSS  
Uganda
MAGIC-Uganda  AG
United Kingdom
ACH  
usUnited States of America
AI 
Bloom Syn 
CAH  
CS  
GHD children  
GHD adults
Hypophosphatasia
ISS  
IGFD  
MAS
Noonans  
ONH  
PAN  
RSS/SRS
SGA  
SOD   
TS 
TSS 
TSGA  
WS  
NS-ORD
CAH 
CPP   
CS-Adults  
CS Children  
GHD children  
GHD adults  
HPP  
IGFD  
ISS 
MAS  
NS
ONH  
PAN  
RSS-english   
RSS-SRS spanish   
SGA  
SOD children 
SOD/ONH Adults  
THY  
TS  
TSS 
TSGA  
Hypophosphatasia
     

Global Partner World Alliance of Pituitary Organizations  wapo logo

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