Patient Groups are so important to ICOSEP.

We encourage any patient group to join and share the importance of good growth. If you know of an organization which is not listed, please contact us and let us know: contactus@icosep.org. Also, if you are interested in building a group or organization in your country, this basic guide may be helpful.

Click here for a Global listing of medical groups and facilities who specializ in endocrinology.

Country

Patient Groups/ Associations

Social Media 

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Africa
 MAGIC Africa All Growth

Argentina
Williams Syndrome S
Klinefelt
Sandberg Syn

Australia
CAH  
TS
SSPA
PIT

WS
PAN 
THY    
SRS / SGA/  RSS
AG    
SOD/ONH
GHD

Austria
 TS  
belgiumb

Belgium
RSS (SRS) 
TS
 

Bosnia & Herzegovina
AG (email contactus@icosep.org for details)  
Brazil

Brazil
FD (website under construction. Please email) RSS (also known as Silver Russell Syndrome)
bulgaria

Bulgaria
AG  TS

Cameroon
  AG

Canada
GHD
TS

ACH (Ontario)
WS

GHD-English
Adults-English
AG-French
RSS-SGA (French) Private
RSS-SGA (French) Public     TS
chili

Chile
  SOD/ONH/PAN/de Morsiers

China
 GHD ONH

Columbia
TS   TS  
Czech_Republic

Czech
WMS  

Denmark
PIT
TS 
SGA
TS
HPP

Dutch /Netherlands
CAH
AI
(Addisons)
NS
PIT
SGA
GH
TS
PIT 1
PIT 2

Ecuador
   TS

England

(Also see United Kingdom)

CAH  
GHD/RSS and ORD  
NS
TS
PAN
Restricted Growth (RG)  
Addisons
GHD  
SOD #1  
SOD (#2)  RG

Finland
TS  TS
HPP

France
AG 
HPP
SRS/PAG (SSR/PAG)
ORD
TS-AGAT
TS-et vous
FD
Grandir
AG
SRS (Alice)
SRS Assoc
AFIF
TS-AGAT
TS-et vous
germany

Germany
RSS/SGA/ACH
WMS   
Skeletal  
TS
Prader W
SRS (RSS)
ORD
greek-flag

Greece
AG

AG  

Greenland
 

HPP

guatemala

Guatemala
  AG
AG2

Holland
TS
FD
 

Hungary
 TS TS

Iceland
 

HPP

India
AG
ORD-diabetes

AG

ireland

Ireland
TS
Genetics 
OR
ACH 
Addisons 
CAH
CAH  
SOD

GHD
israel sm

Israel
 AG AG
italy

Italy
SOD
SRS
  NS  
GHD
TS 
PAN
SGA

ORD 
General 
ACHRO
SOD
SRS(1)
SRS(2)
AFADOC:LinkedIn Facebook YouTube Twitter
FD
japan

Japan
HPP 
HPP (Eng Version)
TSS-Growth 
Pituitary    
SRS/RSS

ASrid-GAD
ASrid-GAD (Facebook)
ASrid-GAD (Twitter)
ASrid-GAD (Instagram)

Kenya
  All Growth
latvia1

Latvia
General  

Lithuania
 TS   TS 
mascedonia

Macedonia
AG GH
mexico-flag

Mexico
  TS  
netherlands-flag11

Netherlands
ORD  
AI
WMS 
TS  
All Growth
Achon 
GHD  
 
new_zealand

New Zealand
 ACH  RSS/SGA
Norway

Norway
WMS
TS 
SGA
HPP
pakistan-flag

Pakistan
  CAH
poland

Poland
TS AG  
TS   
RSS/SRS
portugal

Portugal
   
RomaniaFlag_0

Romania
Prader Willi
Genetics
 PW
russian_flag

Russia
   
Serbian-Flag

Serbia
GHD 
Rare
AG  
GEN
slovakia

Slovakia
WMS 1
WMS 2
 
slovenia

Slovenia
ORD  
THY
 
south-african-flag-large

South Africa
Rare
Pituitary Community
 
spain

Spain
TS 
ACHRO 
AG
Addison
FD
Prader W  
NSRSS (yahoo)
RSS SRS (facebook) 
Addison
FD

Sweden
NS
AG
SGA
HPP
Switzerland-flag

Switzerland
NS
TS
 

Taiwan
RSS  

Uganda
   AG

United Kingdom
ACH
FD
Restricted
All Growth  
FD
SOD
 

United States of America
AI
Bloom Syn
CAH
GHD children
GHD adults
Hypophosphatasia
ISS  
IGFD  
MAS
Noonans  
ONH  
PAN  
RSS/SRS
SGA  
SOD   
TS 
TSS 
TSGA  
WS  
NS-ORD
CAH
CPP  
CS-Adults  
CS Children  
GHD children  
GHD adults  
HPP  
IGFD  
ISS 
MAS  
NS
ONH  
PAN  
RSS-english
RSS-SRS spanish   
SGA  
SOD children
SOD/ONH Adults  
THY  
TS  
TSS 
TSGA  
Hypophosphatasia
wapo logo
Global Partner World Alliance of Pituitary Organizations  

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