Patient Groups are so important to ICOSEP.

We encourage any patient group to join and share the importance of good growth. If you know of an organization which is not listed, please contact us and let us know: contactus@icosep.org. Also, if you are interested in building a group or organization in your country, this basic guide may be helpful.

Click here for a Global listing of medical groups and facilities who specializ in endocrinology.

Country

Patient Groups/ Associations

Social Media 

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Africa
 MAGIC Africa All Growth

Argentina
Williams Syndrome Klinefelt Syn
Sandberg Syn

Australia
CAH  
TS
SSPA
PIT

WS
PAN 
THY    
SRS / SGA/  RSS
AG    
SOD/ONH
GHD
Achon

Austria
 TS  
belgiumb

Belgium
RSS (SRS) 
TS
 

Bosnia & Herzegovina
AG (email contactus@icosep.org for details)  
Brazil

Brazil
FD (website under construction. Please email) RSS (also known as Silver Russell Syndrome)
bulgaria

Bulgaria

AG
Achon 

 TS

Cameroon
  AG

Canada
GHD
TS

Achon (Alberta)

Achon (British Col)

Achon (Ontario)

Achon (Manitoba)
Achon (Quebec)
WS

GHD-English
Adults-English
AG-French
RSS-SGA (French) Private
RSS-SGA (French) Public   
 TS
chili

Chile
  SOD/ONH/PAN/de Morsiers

China
 GHD  

Columbia
TS   TS  
Czech_Republic

Czech

WMS

Achon 

 

Denmark
PIT
TS
Achon
SGA
TS
HPP

Dutch /Netherlands
CAH
AI
(Addisons)
NS
PIT
SGA
GH
TS
PIT 1
PIT 2

Ecuador
   TS

England

(Also see United Kingdom)

CAH  
GHD/RSS and ORD  
NS
TS
PAN
Restricted Growth (RG)  
Addisons
GHD  
SOD #1  
SOD (#2)  
RG

Finland

TS 

Achon 

TS
HPP

France

AG 
HPP
SRS/PAG (SSR/PAG)
ORD
TS-AGAT
TS-et vous
Achon  

Grandir
AG
SRS (Alice)
SRS Assoc
AFIF
TS-AGAT
TS-et vous
germany

Germany
RSS/SGA/ACH
WMS   
Skeletal  
TS
Prader W
Achon 
SRS (RSS)
ORD
greek-flag

Greece
AG

AG  

Greenland
 

HPP

guatemala

Guatemala
  AG
AG2

Holland
TS
FD
Achon
 

Hungary
  TS
Achon

Iceland
 

HPP

India
AG
ORD-diabetes

AG

ireland

Ireland
TS
Other Rare
ACH 
Addisons 
CAH
CAH  
SOD

GHD
Achon 
israel sm

Israel
 AG AG
italy

Italy
SOD
SRS
NS  
GHD
TS 
PAN
SGA

ORD 
General 
ACHON
SOD
SRS(1)
SRS(2)
AFADOC:LinkedIn Facebook YouTube Twitter
FD
japan

Japan
HPP 
HPP (Eng Version)
TSS-Growth 
Pituitary    
SRS/RSS

ASrid-GAD
Achon 
ASrid-GAD (Facebook)
ASrid-GAD (Twitter)
ASrid-GAD (Instagram)

Kenya
 

All Growth

Achon 

latvia1

Latvia
General  

Lithuania
 TS   TS 
mascedonia

Macedonia
AG GH

Malaysia
AD  
mexico-flag

Mexico
 

TS  

Achon 

netherlands-flag11

Netherlands
ORD  
AI
WMS 
TS  
All Growth
Achon 
GHD  
 
new_zealand

New Zealand
 ACH  RSS/SGA
Norway

Norway

WMS
TS
Achon  

SGA
HPP
pakistan-flag

Pakistan
  CAH

Philippines
  Achon
poland

Poland
TS
Achon 
AG  
TS   
RSS/SRS
portugal

Portugal
Achon   
RomaniaFlag_0

Romania
Prader Willi
Genetics
 PW
russian_flag

Russia
All    
Serbian-Flag

Serbia
GHD 
Rare
AG  
GEN

Scotland
AG  
slovakia

Slovakia

WMS 1
WMS 2

Achon 

 
slovenia

Slovenia
ORD  
THY
 
south-african-flag-large

South Africa
Rare
Pituitary Community
 
south-african-flag-large

South Korea
AG  
spain

Spain
TS 
ACHON #1  Achon#2 
AG
Addison
FD
Prader W  
RSS SRS (facebook) 
Addison
FD

Sweden

NS
AG
Achon 

SGA
HPP
Switzerland-flag

Switzerland
NS
TS
Achon  
 

Taiwan
RSS  

Uganda
   AG

United Kingdom
ACH
FD
Restricted Growth
All Growth  
European Skeletal
FD
SOD
 

United States of America
AI
Bloom Syn
CAH
GHD children
GHD adults
Hypophosphatasia
ISS  
IGFD  
MAS
Noonans  
ONH  
PAN  
RSS/SRS
SGA  
SOD   
TS 
TSS 
TSGA  
WS  
NS-ORD
CAH
CPP  
CS-Adults  
CS Children  
GHD children  
GHD adults  
HPP  
IGFD  
ISS 
MAS  
NS
ONH  
PAN  
RSS-english
RSS-SRS spanish   
SGA  
SOD children
SOD/ONH Adults  
THY  
TS  
TSS 
TSGA  
Hypophosphatasia
wapo logo
Global Partner World Alliance of Pituitary Organizations  

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