In non medical terms, if a person with adrenal health issues can become ill, they can potentially die if they do not have access to fludrocortisone or hyrdocortisone medicine.

Various countries in South America have not allowed one or both of these critical medications on their approval pay list. Perhaps officials do not understand how important this is, and we hope to teach them. Children’s and adult’s lives truly depend on our efforts!

Fludrocortisone and hyrdocortisone have different manufacturers and different names but all have one common factor…..they can critically affect lives.

It has been brought to the attention of our ICOSEP members that many families throughout South America are desperate to get governmental approvals of this medication. Doctors have been prescribing it, but without governmental approval it is not legally allowed.

Therefore, at the request of medical associations and families, ICOSEP is developing ways to help.

Our plan is to:
1. Build a strong list of people; patient organization members and medical society representatives, who will (later) send an email to government officials asking them to approve this types of vital medication for the children and adults.

and while we are building our list of supporting “people”….we will also be trying to …..

2. Determine who the government officials are who can approve this medical treatment, and discover their contact information.

Once we have our team of volunteer voices, and who the officials are who can change the current system….we will…..

3. Send everyone who signed up a “GO” message. We will provide a sample letter so that you can use it and rewrite it if you wish, or simply sign and send it as your own to the officials email.

Please help us. It does not matter if you live in South America or a different country. Anyone can join this effort! We will need as many people in South America as possible to sign up with us. If you have any contacts, social media opportunities etc. – when the time comes…. please share our message of hope and consideration of authorization for these critical medications!

TO JOIN OUR LIST OF SUPPORTERS
Send an email to contactus@icosep.org or jamie@magicfoundation.org and put South America assistance in the subject line.

Children’s and adult lives can be truly changed if we are successful.

Thank you!

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