This page is dedicated to listing activities of patient support organizations. If you are a member of an organization with an upcoming event which is specific to a growth associated condition, please email the information to for inclusion consideration. If nothing is listed for your area, contact the patient organization in your area for information.


Country Organization Event/ Activity


Rare Disease Day
Austria ICOSEP ICOSEP Meeting

2-4 May


International All Organizations International Growth Awareness Campaign

20 September


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