This page is always updating. If you have a organization or social media group which supports endocrine patients, parents of affected children, or affected adults which is not listed, click here JOIN FREE to join our voices. Thank you and Welcome!

Click here for a Global listing of medical groups and facilities who specialize in endocrinology.

If you are interested in building a group or organization in your country where none exist, this basic guide may be helpful.

COUNTRY

Patient Organization / Associations

Social Media Groups facebook-icon_thumb yahoo-icon
or click to see our You Tube Channel of Online Videos

 
argentina-flag-
Argentina
Williams Syndrome
currently unavailable- please send updates to ContactUs@icosep.org
australia_flagAustralia CAH  TS SSPA  PIT  PAN   THY    SRS   RSS
AG

Austria

 TS
belgiumbBelgium  RSS (SRS)  TS
Bosnia & Herzegovina AG (email contactus@icosep.org for details)
Brazil Brazil RSS (also known as Silver Russell Syndrome)
bulgariaBulgaria AG AG AG  TS
canadaCanada  GHD

TS ACH (Ontario)

 GHD-English
Adults-English
AG-French
RSS-SGA (French) Private
RSS-SGA (French) Public
chili Chile  SOD/PAN/de Morsiers ;
China  GHD
Czech_RepublicCzech WMS
denmark flagDenmark PIT

TS 

 SGA
netherlandsDutch /Netherlands CAH AI (Addisons) NS PIT SGA GH TS  PIT, PIT
Ecuador  TS
uk_flagEngland & UK CAH  GHD/RSS and ORD NS  TS PAN Restricted Growth (RG)   Addisons  GHD  SOD #1  SOD (#2)  RG
franceFrance  AG SRS /SGA  ORD  SRS (Alice)  SRS Assoc
germanyGermany RSS/SGA/ACH ORD
MAS  GHD/PAN THY #1  THY #2 AI  WMS   Skeletal TS
 SRS (RSS) ORD
greek-flagGreece AG  
guatemalaGuatemala AG and AG2

Hungary

 TS
India AG

ORD-diabetes

AG
irelandIreland  TS Genetics ORD ACH  CAH  SOD
israel smIsrael  AG AG
italy
Italy
SOD SRS NS  GHD TS PAN SGA ORD General  ACHRO SOD SRS(1) SRS(2)
AFADOC Facebook LinkedIn YouTube Twitter
japan Japan TSS-Growth Pituitary
latvia1 Latvia General, GHD

Lithuania

 TS  TS
mascedonia Macedonia AG GH
mexico-flagMexico  TS
netherlands-flag11Netherlands  ORD  AI WMS 
new_zealand New Zealand CAH ACH  RSS/SGA
Norway Norway WMS

TS 

 SGA
pakistan-flagPakistan CAH
poland Poland SRS TS  AG  TS   RSS/SRS
portugalPortugal
RomaniaFlag_0 Romania  Prader Willi Genetics  
russian_flagRussia  WMS
Serbian-FlagSerbia  GHD AG
slovakiaSlovakia  WMS 1  WMS 2
sloveniaSlovenia  ORD  THY  GEN
south-african-flag-largeSouth Africa  Rare

Deaf Awareness Association of Faso (A.S.C.F)  (pending verification)

spain Spain  RSS/SRS

TS ACHRO

NSRSS (yahoo) RSS SRS (facebook)
sweden_flagSweden  NS  SGA
Switzerland-flagSwitzerland  NS
Taiwan_flagTaiwan RSS
Uganda MAGIC-Uganda  AG
United Kingdom ACH
usUnited States of America AI Bloom Syn CAH CPP  CS  GHD children  GHD adults Hypophosphatasia ISS  IGFD  MASNoonans  ONH  PAN  RSS/SRS SGA  SOD   TS TSS TSGA  WS  NS-ORD CAH CPP   CS-Adults  CS Children  GHD children  GHD adults  HPP  IGFD   ISS MAS  NS ONH  PAN  RSS-english   RSS-SRS spanish   SGA  SOD children SOD/ONH Adults  THY  TS  TSS  TSGA  ORD-Hypophosphatasia

Global Partner World Alliance of Pituitary Organizations  wapo logo

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