![International Coalition of Organizations Supporting Endocrine Patients [ICOSEP]](https://icosep.org/wp-content/uploads/2018/10/cropped-icosep-daily-banner.jpg)
Patient Groups are so important to ICOSEP.
We encourage any patient group to join and share the importance of good growth. If you know of an organization which is not listed, please contact us and let us know: contactus@icosep.org. Also, if you are interested in building a group or organization in your country, this basic guide may be helpful.
Click here for a Global listing of medical groups and facilities who specialize in endocrinology.
COUNTRY |
Patient Group/ Associations |
Social Media Groups
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Williams Syndrome currently unavailable- please send updates to ContactUs@icosep.org |
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CAH TS SSPA PIT | PAN THY SRS RSS AG |
Austria |
TS | |
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RSS (SRS) TS | |
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AG (email contactus@icosep.org for details) | |
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RSS (also known as Silver Russell Syndrome) | |
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AG AG AG | TS |
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GHD | GHD-English Adults-English AG-French RSS-SGA (French) Private RSS-SGA (French) Public TS |
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SOD/PAN/de Morsiers ; | |
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GHD | |
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WMS | |
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PIT | SGA |
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CAH AI (Addisons) NS PIT SGA GH TS | PIT, PIT |
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TS | |
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CAH GHD/RSS and ORD NS TS PAN Restricted Growth (RG) Addisons | GHD SOD #1 SOD (#2) RG |
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TS | |
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AG SRS /SGA ORD TS | SRS (Alice) SRS Assoc |
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RSS/SGA/ACH ORD MAS GHD/PAN THY #1 THY #2 AI WMS Skeletal TS |
SRS (RSS) ORD |
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AG | |
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AG and AG2 |
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Hungary |
TS | TS |
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AG | AG |
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TS Genetics ORD ACH Addisons | CAH SOD |
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AG | AG |
Italy |
SOD SRS NS GHD TS PAN SGA ORD General ACHRO | SOD SRS(1) SRS(2) AFADOC Facebook LinkedIn YouTube Twitter |
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TSS-Growth Pituitary | |
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All Growth | |
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General, GHD | |
Lithuania |
TS | TS |
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AG | GH |
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TS (currently unavailable) | |
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ORD AI WMS TS | |
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ACH | RSS/SGA |
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WMS | SGA |
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CAH | |
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SRS TS | AG TS RSS/SRS |
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Prader Willi Genetics | PW |
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GHD | AG |
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WMS 1 WMS 2 | |
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ORD THY | GEN |
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Rare
Deaf Awareness Association of Faso (A.S.C.F) (pending verification) |
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TS ACHRO All Growth Addison | NSRSS (yahoo) RSS SRS (facebook) Addison |
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NS All Growth | SGA |
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NS TS | |
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RSS | |
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MAGIC-Uganda | AG |
United Kingdom |
ACH | |
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AI Bloom Syn CAH CPP CS GHD children GHD adults Hypophosphatasia ISS IGFD MASNoonans ONH PAN RSS/SRS SGA SOD TS TSS TSGA WS NS-ORD | CAH CPP CS-Adults CS Children GHD children GHD adults HPP IGFD ISS MAS NS ONH PAN RSS-english RSS-SRS spanish SGA SOD children SOD/ONH Adults THY TS TSS TSGA ORD-Hypophosphatasia |
Bosnia & Herzegovina
China
Ecuador
Finland
Guatemala
India
Israel
Kenya
Mexico
Romania
South Africa
Spain
Sweden
Taiwan
Uganda
Global Partner World Alliance of Pituitary Organizations 