Patient Groups

This page is always under construction as new groups learn about our coalition. If you have a organization or social media group which supports endocrine patients, parents of affected children, or affected adults and that group or organization is not listed, please click the JOIN FREE button at the top of this page and let us know who you are so that we can include you. Thank you and Welcome! Global listing of medical groups and facilities who specialize in endocrinology.

COUNTRY	Patient Organization / Associations	Social Media Groups
Argentina	Williams Syndrome currently unavailable- please send updates to ContactUs@icosep.org
Australia	CAH  TS SSPA  PIT	PAN   THY    SRS   RSS SOD/ONH
Belgium	RSS (SRS)
Brazil		RSS (also known as Silver Russell Syndrome)
Bulgaria
Canada	GHD	GHD-English Adults-English All Growth-French RSS-SGA (French) Private RSS-SGA (French) Public
Chile		SOD/PAN/de Morsiers
Czech	WMS
Denmark	PIT	SGA
Dutch /Netherlands	CAH AI (Addisons) NS
England & UK	CAH  GHD/RSS and ORD NS  TS PAN Restricted Growth (RG)   Addisons	GHD  SOD #1  SOD (#2)    RG
France	GHD  SRS /SGA  ORD	SRS (Alice)   SRS Assoc
Germany	RSS/SGA/ACH MAS   GHD/PAN THY #1  THY #2 AI  WMS   Skeletal	SRS (RSS)
Greece	All Growth	All Growth
Guatemala		All Growth and All Growth 2
India	CAH	CAH
Ireland	TS Genetics    ORD	CAH  SOD
Israel	All Growth	All Growth
Italy	SOD SRS NS  GHD TS PAN SGA other Growth Hormone conditions General	SOD   SRS(1)     SRS(2)
Japan	TSS-Growth
Latvia	General
Macedonia	All Growth	GH
Mexico	TS
Netherlands	ORD  AI WMS
New Zealand	CAH	RSS/SGA
Norway	WMS	SGA
Pakistan		CAH
Poland	SRS	All Growth  RSS/SRS
Portugal
Romania	Prader Willi Genetics  ORD
Russia	WMS
Serbia	GHD	Growth
Slovakia	WMS 1  WMS 2
Slovenia	ORD   THY
South Africa	Rare Deaf Awareness Association of Faso (A.S.C.F)  (pending verification)
Spain	RSS/SRS	NSRSS (yahoo) RSS SRS (facebook)
Sweden	NS	SGA
Switzerland	NS
Taiwan	RSS
Uganda	MAGIC-Uganda	All Growth
United States of America	AI  CAH   CPP  CS  GHD children   GHD adults Hypophosphatasia ISS  IGFD  MAS Noonans  ONH   PAN     RSS/SRS SGA   SOD   TS  TSS TSGA  WS  NS-ORD	CAH    CPP    CS-Adults  CS Children  GHD children    GHD adults  HPP  IGFD     ISS   MAS    NS ONH    PAN    RSS-english   RSS-SRS spanish   SGA    SOD children   SOD/ONH Adults  THY  TS  TSS   TSGA  ORD-Hypophosphatasia

Global Partner   World Alliance of Pituitary Organizations