Patient Groups patient group

Patient Groups are so important to ICOSEP.

We encourage any patient group to join and share the importance of good growth. If you know of an organization which is not listed, please contact us and let us know: contactus@icosep.org. Also, if you are interested in building a group or organization in your country, this basic guide may be helpful.

Click here for a Global listing of medical groups and facilities who specialize in endocrinology.

COUNTRY	Patient Groups/ Associations	Social Media or click to see our You Tube Channel of Online Videos
Argentina	Williams Syndrome	TS,Klinefelt, Sandberg Syn
Australia	CAH TS SSPA PIT WS	PAN THY SRS / SGA/ RSS AG SOD/ONH
Austria************	TS
Belgium	RSS (SRS) TS
Bosnia & Herzegovina	AG (email contactus@icosep.org for details)
Brazil		RSS (also known as Silver Russell Syndrome)
Bulgaria	AG	TS
Cameroon		AG
Canada	GHD TS ACH (Ontario) WS	GHD-English Adults-English AG-French RSS-SGA (French) Private RSS-SGA (French) Public TS
Chile		SOD/ONH/PAN/de Morsiers ;
China	GHD	ONH
Columbia	TS	TS
Czech	WMS
Denmark	PIT TS	SGA TS
Dutch /Netherlands	CAH AI (Addisons) NS PIT SGA GH TS	PIT 1 PIT 2
Ecuador		TS
England	CAH GHD/RSS and ORD NS TS PAN Restricted Growth (RG) Addisons	GHD SOD #1 SOD (#2) RG
Finland	TS	TS
France	AG SRS/PAG (SSR/PAG) ORD TS	Grandir AG SRS (Alice) SRS Assoc AFIF
Germany	RSS/SGA/ACH WMS Skeletal TS	SRS (RSS) ORD
Greece	AG	AG
Guatemala		AG AG2
Holland	TS
Hungary	TS	TS
India	AG ORD-diabetes	AG
Ireland	TS Genetics ORD ACH Addisons CAH	CAH SOD
Israel	AG	AG
Italy	SOD SRS NS GHD TS PAN SGA ORD General ACHRO	SOD SRS(1) SRS(2) AFADOC-LinkedIn: https://www.linkedin.com/in/afadoc/Facebook YouTube Twitter
Japan	TSS-Growth Pituitary SRS/RSS ASrid-GAD	ASrid-GAD (Facebook) ASrid-GAD (Twitter) ASrid-GAD (Instagram)
Kenya		All Growth
Latvia	General
Lithuania	TS	TS
Macedonia	AG	GH
Mexico		TS
Netherlands	ORD AI WMS TS
New Zealand	ACH	RSS/SGA
Norway	WMS TS	SGA
Pakistan		CAH
Poland	TS	AG TS RSS/SRS
Portugal
Romania	Prader Willi Genetics	PW
Russia
Serbia	GHD Rare	AG GEN
Slovakia	WMS 1 WMS 2
Slovenia	ORD THY
South Africa	Rare Pituitary Community Deaf Awareness Association of Faso (A.S.C.F) (pending verification)
Spain	TS ACHRO AG Addison	NSRSS (yahoo) RSS SRS (facebook) Addison
Sweden	NS All Growth	SGA
Switzerland	NS TS
Taiwan	RSS
Uganda	MAGIC-Uganda	AG
United Kingdom	ACH
United States of America	AI Bloom Syn CAH GHD children GHD adults Hypophosphatasia ISS IGFD MAS Noonans ONH PAN RSS/SRS SGA SOD TS TSS TSGA WS NS-ORD	CAH CPP CS-Adults CS Children GHD children GHD adults HPP IGFD ISS MAS NS ONH PAN RSS-english RSS-SRS spanish SGA SOD children SOD/ONH Adults THY TS TSS TSGA Hypophosphatasia