This page is always updating. If you have a organization or social media group which supports endocrine patients, parents of affected children, or affected adults which is not listed, click here JOIN FREE to join our voices. Thank you and Welcome!

Click here for a Global listing of medical groups and facilities who specialize in endocrinology.

If you are interested in building a group or organization in your country where none exist, this basic guide may be helpful.

COUNTRY

Patient Organization / Associations

Social Media Groups facebook-icon_thumb yahoo-icon
or click to see our You Tube Channel of Online Videos 

 
argentina-flag-
Argentina
Williams Syndrome
currently unavailable- please send updates to ContactUs@icosep.org
australia_flagAustralia CAH  TS SSPA  PIT  PAN   THY    SRS   RSS
AG

Austria

 TS
belgiumbBelgium   RSS (SRS)
Bosnia & Herzegovina AG (email contactus@icosep.org for details)
Brazil Brazil RSS (also known as Silver Russell Syndrome)
bulgariaBulgaria AG   TS
canadaCanada  GHD

TS

 GHD-English
Adults-English
AG-French
RSS-SGA (French) Private
RSS-SGA (French) Public
chili Chile  SOD/PAN/de Morsiers ;
China  GHD
Czech_RepublicCzech WMS
denmark flagDenmark PIT

TS 

 SGA
netherlandsDutch /Netherlands CAH AI (Addisons) NS PIT SGA GH TS  PIT, PIT
  Ecuador  TS
uk_flagEngland & UK CAH  GHD/RSS and ORD NS  TS PAN Restricted Growth (RG)   Addisons  GHD  SOD #1  SOD (#2)    RG
franceFrance  AG  SRS /SGA  ORD   SRS (Alice)   SRS Assoc
germanyGermany RSS/SGA/ACH ORD
MAS   GHD/PAN THY #1  THY #2 AI  WMS   Skeletal TS
 SRS (RSS) ORD
greek-flagGreece AG   
guatemalaGuatemala  AG and AG2

Hungary

 TS
India AG

ORD-diabetes

AG
irelandIreland  TS Genetics    ORD  CAH  SOD
israel smIsrael  AG AG
italy
Italy
SOD SRS NS  GHD TS PAN SGA ORD General  ACHRO SOD   SRS(1)     SRS(2)
AFADOC Facebook LinkedIn YouTube   Twitter
japan Japan TSS-Growth   Pituitary
latvia1 Latvia General, GHD
  

Lithuania

 TS  TS 
mascedonia Macedonia AG  GH
mexico-flagMexico    TS
netherlands-flag11Netherlands  ORD  AI WMS  
new_zealand  New Zealand CAH  RSS/SGA
Norway Norway  WMS

TS 

 SGA
pakistan-flagPakistan CAH
poland Poland SRS TS  AG  TS   RSS/SRS
portugalPortugal
RomaniaFlag_0 Romania  Prader Willi Genetics  
russian_flagRussia  WMS
Serbian-FlagSerbia  GHD AG
slovakiaSlovakia  WMSWMS 2
sloveniaSlovenia  ORD   THY  GEN
south-african-flag-largeSouth Africa  Rare

Deaf Awareness Association of Faso (A.S.C.F)  (pending verification)

spain Spain  RSS/SRS

TSA   ACHRO

NSRSS (yahoo) RSS SRS (facebook)
sweden_flagSweden  NS  SGA
Switzerland-flagSwitzerland  NS
Taiwan_flagTaiwan RSS
Uganda MAGIC-Uganda  AG
usUnited States of America AI Bloom Syn CAH   CPP  CS  GHD children   GHD adults Hypophosphatasia ISS  IGFD  MAS Noonans  ONH   PAN     RSS/SRS SGA   SOD   TS  TSS TSGA  WS  NS-ORD CAH    CPP    CS-Adults  CS Children  GHD children    GHD adults  HPP  IGFD     ISS   MAS    NS ONH    PAN    RSS-english   RSS-SRS spanish   SGA    SOD children   SOD/ONH Adults  THY  TS  TSS   TSGA  ORD-Hypophosphatasia

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