This page is always under construction as new groups learn about our coalition. If you have a organization or social media group which supports endocrine patients, parents of affected children, or affected adults and that group or organization is not listed, please click the JOIN FREE button at the top of this page and let us know who you are so that we can include you. Thank you and Welcome! Global listing of medical groups and facilities who specialize in endocrinology.

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COUNTRY

Patient Organization / Associations

Social Media Groups facebook-icon_thumb yahoo-icon
or click to see our You Tube Channel of Online Videos 

 
argentina-flag-
Argentina
Williams Syndrome
currently unavailable- please send updates to ContactUs@icosep.org
australia_flagAustralia CAH  TS SSPA  PIT  PAN   THY    SRS   RSS
SOD/ONH 
 

Austria

 TS
belgiumbBelgium   RSS (SRS)
Bosnia & Herzegovina SA-RAST (all Growth)  email ContactUs@icosep.org for details
Brazil Brazil RSS (also known as Silver Russell Syndrome)
bulgariaBulgaria  All growth   TS
canadaCanada  GHD

TS

 GHD-English
Adults-English
All Growth-French
RSS-SGA (French) Private
RSS-SGA (French) Public
chili Chile  SOD/PAN/de Morsiers
Czech_RepublicCzech WMS
denmark flagDenmark PIT

TS 

 SGA
netherlandsDutch /Netherlands CAH AI (Addisons) NS PIT SGA GH TS  PIT, PIT
  Ecuador  TS
uk_flagEngland & UK CAH  GHD/RSS and ORD NS  TS PAN Restricted Growth (RG)   Addisons  GHD  SOD #1  SOD (#2)    RG
franceFrance  GHD  SRS /SGA  ORD   SRS (Alice)   SRS Assoc
germanyGermany RSS/SGA/ACH ORD
MAS   GHD/PAN THY #1  THY #2 AI  WMS   Skeletal TS
 SRS (RSS) ORD
greek-flagGreece All Growth   
guatemalaGuatemala  All Growth and All Growth 2
 

Hungary

 TS
India  CAH CAH and other Growth Issues
irelandIreland  TS Genetics    ORD  CAH  SOD
israel smIsrael  All Growth All Growth
italy
Italy
SOD SRS NS  GHD TS PAN SGA other Growth Hormone conditions General SOD   SRS(1)     SRS(2)
japan Japan
TSS-Growth
latvia1 Latvia General, GHD
 

Lithuania

 TS  TS 
mascedonia Macedonia All Growth  GH
mexico-flagMexico    TS
netherlands-flag11Netherlands  ORD  AI WMS  
new_zealand  New Zealand CAH  RSS/SGA
Norway Norway  WMS

TS 

 SGA
pakistan-flagPakistan  CAH
poland Poland SRS  All Growth  RSS/SRS
portugalPortugal
RomaniaFlag_0 Romania  Prader Willi Genetics  ORD  
russian_flagRussia  WMS
Serbian-FlagSerbia  GHD  Growth
slovakiaSlovakia  WMSWMS 2
sloveniaSlovenia  ORD   THY  GEN
south-african-flag-largeSouth Africa  Rare

Deaf Awareness Association of Faso (A.S.C.F)  (pending verification)

spain Spain  RSS/SRS

TS

NSRSS (yahoo) RSS SRS (facebook)
sweden_flagSweden  NS  SGA
Switzerland-flagSwitzerland  NS
Taiwan_flagTaiwan RSS
Uganda MAGIC-Uganda  All Growth
usUnited States of America AI  CAH   CPP  CS  GHD children   GHD adults Hypophosphatasia ISS  IGFD  MAS Noonans  ONH   PAN     RSS/SRS SGA   SOD   TS  TSS TSGA  WS  NS-ORD CAH    CPP    CS-Adults  CS Children  GHD children    GHD adults  HPP  IGFD     ISS   MAS    NS ONH    PAN    RSS-english   RSS-SRS spanish   SGA    SOD children   SOD/ONH Adults  THY  TS  TSS   TSGA  ORD-Hypophosphatasia

Global Partner   World Alliance of Pituitary Organizations    wapo logo

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