Patient Groups

This page is always updating. If you have a organization or social media group which supports endocrine patients, parents of affected children, or affected adults which is not listed, click here JOIN FREE to join our voices. Thank you and Welcome!

Click here for a Global listing of medical groups and facilities who specialize in endocrinology.

If you are interested in building a group or organization in your country where none exist, this basic guide may be helpful.

COUNTRY	Patient Organization / Associations	Social Media Groups   or click to see our You Tube Channel of Online Videos
Argentina	Williams Syndrome currently unavailable- please send updates to ContactUs@icosep.org
Australia	CAH  TS SSPA  PIT	PAN   THY    SRS   RSS AG
Austria	TS
Belgium	RSS (SRS)  TS
Bosnia & Herzegovina	AG (email contactus@icosep.org for details)
Brazil		RSS (also known as Silver Russell Syndrome)
Bulgaria	AG AG AG	TS
Canada	GHD TS ACH (Ontario)	GHD-English Adults-English AG-French RSS-SGA (French) Private RSS-SGA (French) Public     TS
Chile		SOD/PAN/de Morsiers ;
China	GHD
Czech	WMS
Denmark	PIT TS	SGA
Dutch /Netherlands	CAH AI (Addisons) NS PIT SGA GH TS	PIT, PIT
Ecuador		TS
England & UK	CAH  GHD/RSS and ORD NS  TS PAN Restricted Growth (RG)   Addisons	GHD  SOD #1  SOD (#2)  RG
France	AG SRS /SGA  ORD TS	SRS (Alice)  SRS Assoc
Finland	TS
Germany	RSS/SGA/ACH ORD MAS  GHD/PAN THY #1  THY #2 AI  WMS   Skeletal TS	SRS (RSS) ORD
Greece		AG
Guatemala		AG and AG2
Hungary	TS	TS
India	AG ORD-diabetes	AG
Ireland	TS Genetics ORD ACH	CAH  SOD
Israel	AG	AG
Italy	SOD SRS NS  GHD TS PAN SGA ORD General  ACHRO	SOD SRS(1) SRS(2) AFADOC Facebook LinkedIn YouTube Twitter
Japan	TSS-Growth Pituitary
Kenya		All Growth
Latvia	General, GHD
Lithuania	TS	TS
Macedonia	AG	GH
Mexico	TS (currently unavailable)
Netherlands	ORD  AI WMS  TS
New Zealand	CAH ACH	RSS/SGA
Norway	WMS TS	SGA
Pakistan		CAH
Poland	SRS TS	AG  TS   RSS/SRS
Portugal
Romania	Prader Willi Genetics	PW
Russia	WMS
Serbia	GHD	AG
Slovakia	WMS 1  WMS 2
Slovenia	ORD  THY	GEN
South Africa	Rare Pituitary Community Deaf Awareness Association of Faso (A.S.C.F)  (pending verification)
Spain	TS ACHRO All Growth	NSRSS (yahoo) RSS SRS (facebook)
Sweden	NS All Growth	SGA
Switzerland	NS TS
Taiwan	RSS
Uganda	MAGIC-Uganda	AG
United Kingdom	ACH
United States of America	AI Bloom Syn CAH CPP  CS  GHD children  GHD adults Hypophosphatasia ISS  IGFD  MASNoonans  ONH  PAN  RSS/SRS SGA  SOD   TS TSS TSGA  WS  NS-ORD	CAH CPP   CS-Adults  CS Children  GHD children  GHD adults  HPP  IGFD   ISS MAS  NS ONH  PAN  RSS-english   RSS-SRS spanish   SGA  SOD children SOD/ONH Adults  THY  TS  TSS  TSGA  ORD-Hypophosphatasia

Global Partner World Alliance of Pituitary Organizations