Patient Groups patient group

Patient Groups are so important to ICOSEP.

We encourage any patient group to join and share the importance of good growth. If you know of an organization which is not listed, please contact us and let us know: contactus@icosep.org. Also, if you are interested in building a group or organization in your country, this basic guide may be helpful.

Click here for a Global listing of medical groups and facilities who specializ in endocrinology.

Country	Patient Groups/ Associations	Social Media or click to see our You Tube Channel of Online Videos
Africa	MAGIC Africa	All Growth
Argentina	Williams Syndrome	Klinefelt Syn Sandberg Syn
Australia	CAH TS SSPA PIT WS	PAN THY SRS / SGA/ RSS AG SOD/ONH GHD Achon
Austria	TS
Belgium	RSS (SRS) TS
Bosnia & Herzegovina	AG (email contactus@icosep.org for details)
Brazil	FD (website under construction. Please email)	RSS (also known as Silver Russell Syndrome)
Bulgaria	AG Achon	TS
Cameroon		AG
Canada	GHD TS Achon (Alberta) Achon (British Col) Achon (Ontario) Achon (Manitoba) Achon (Quebec) WS	GHD-English Adults-English AG-French RSS-SGA (French) Private RSS-SGA (French) Public TS
Chile		SOD/ONH/PAN/de Morsiers
China	GHD
Columbia	TS	TS
Croatia	Rare
Czech	WMS Achon
Denmark	PIT TS Achon	SGA TS HPP
Dutch /Netherlands	CAH AI (Addisons) NS PIT SGA GH TS	PIT 1 PIT 2
Ecuador		TS
England (Also see United Kingdom)	CAH GHD/RSS and ORD NS TS PAN Restricted Growth (RG) Addisons	GHD SOD #1 SOD (#2) RG
Finland	TS Achon	TS HPP
France	AG HPP SRS/PAG (SSR/PAG) ORD TS-AGAT TS-et vous Achon	Grandir AG SRS (Alice) SRS Assoc AFIF TS-AGAT TS-et vous
Germany	RSS/SGA/ACH WMS Skeletal TS Prader W Achon	SRS (RSS) ORD
Greece	AG	AG
Greenland		HPP
Guatemala		AG AG2
Holland	TS FD Achon
Hungary		TS Achon
Iceland		HPP
India	AG ORD-diabetes	AG
Ireland	TS Other Rare ACH Addisons CAH	CAH SOD GHD Achon
Israel	AG	AG
Italy	SOD SRS NS GHD TS PAN SGA ORD General ACHON	SOD SRS(1) SRS(2) AFADOC:LinkedIn Facebook YouTube Twitter FD
Japan	HPP HPP (Eng Version) TSS-Growth Pituitary SRS/RSS ASrid-GAD Achon	ASrid-GAD (Facebook) ASrid-GAD (Twitter) ASrid-GAD (Instagram)
Kenya		All Growth Achon
Latvia	General
Lithuania	TS	TS
Macedonia	AG	GH
Malaysia	AD
Mexico		TS Achon
Netherlands	ORD AI WMS TS All Growth Achon GHD
New Zealand	ACH	RSS/SGA
Norway	WMS TS Achon	SGA HPP
Pakistan		CAH
Philippines		Achon
Poland	TS Achon	AG TS RSS/SRS
Portugal	Achon
Romania	Prader Willi Genetics	PW
Russia	All
Serbia	GHD Rare	AG GEN
Scotland	AG
Slovakia	WMS 1 WMS 2 Achon
Slovenia	ORD THY
South Africa	Rare Pituitary Community
South Korea	AG
Spain	TS ACHON #1 Achon#2 AG Addison FD Prader W	RSS SRS (facebook) Addison FD
Sweden	NS AG Achon	SGA HPP
Switzerland	NS TS Achon
Taiwan	RSS
Uganda		AG
United Kingdom	ACH FD Restricted Growth All Growth European Skeletal	FD SOD
United States of America	AI Achon Achon Intl LPoWO Bloom Syn CAH GHD children GHD adults Hypophosphatasia ISS IGFD MAS Noonans ONH PAN RSS/SRS SGA SOD TS TSS TSGA WS NS-ORD	CAH CPP CS-Adults CS Children GHD children GHD adults HPP IGFD ISS MAS NS ONH PAN RSS-english RSS-SRS spanish SGA SOD children SOD/ONH Adults THY TS TSS TSGA Hypophosphatasia