Patient Groups are so important to ICOSEP.

We encourage any patient group to join and share the importance of good growth. If you know of an organization which is not listed, please contact us and let us know: contactus@icosep.org. Also, if you are interested in building a group or organization in your country, this basic guide may be helpful.

Click here for a Global listing of medical groups and facilities who specialize in endocrinology.

COUNTRY

Patient Group/ Associations

Social Media Groups facebook-icon_thumb yahoo-icon
or click to see our You Tube Channel of Online Videos


argentina-flag-
Argentina
Williams Syndrome
currently unavailable- please send updates to ContactUs@icosep.org
australia_flagAustralia
CAH  TS SSPA  PIT  PAN   THY    SRS   RSS
AG

Austria
 TS
belgiumbBelgium
 RSS (SRS)  TS
Bosnia & Herzegovina
AG (email contactus@icosep.org for details)
Brazil Brazil
RSS (also known as Silver Russell Syndrome)
bulgariaBulgaria
AG AG AG  TS
canadaCanada
 GHD

TS ACH (Ontario)

 GHD-English
Adults-English
AG-French
RSS-SGA (French) Private
RSS-SGA (French) Public     TS
chili Chile
 SOD/PAN/de Morsiers ;
China
 GHD
Czech_RepublicCzech
WMS
denmark flagDenmark
PIT

TS 

 SGA
netherlandsDutch /Netherlands
CAH AI (Addisons) NS PIT SGA GH TS  PIT, PIT
Ecuador
 TS
uk_flagEngland & UK
CAH  GHD/RSS and ORD NS  TS PAN Restricted Growth (RG)   Addisons  GHD  SOD #1  SOD (#2)  RG
Finland
TS 
france
France
AG SRS /SGA  ORD TS  SRS (Alice)  SRS Assoc
germanyGermany
RSS/SGA/ACH ORD
MAS  GHD/PAN THY #1  THY #2 AI  WMS   Skeletal TS
 SRS (RSS) ORD
greek-flagGreece
AG  
guatemalaGuatemala
AG and AG2

Hungary
 TS TS
India
AG

ORD-diabetes

AG
irelandIreland
 TS Genetics ORD ACH Addisons  CAH  SOD
israel smIsrael
 AG AG
italy

Italy
SOD SRS NS  GHD TS PAN SGA ORD General  ACHRO SOD SRS(1) SRS(2)
AFADOC Facebook LinkedIn YouTube Twitter
japan Japan
TSS-Growth Pituitary
Kenya
All Growth
latvia1 Latvia
General, GHD

Lithuania
 TS  TS
mascedonia Macedonia
AG GH
mexico-flagMexico
 TS (currently unavailable)
netherlands-flag11Netherlands
 ORD  AI WMS  TS  
new_zealand New Zealand
 ACH  RSS/SGA
Norway Norway
WMS

TS 

 SGA
pakistan-flagPakistan
CAH
poland Poland
SRS TS  AG  TS   RSS/SRS
portugalPortugal
RomaniaFlag_0 Romania
 Prader Willi Genetics  PW
russian_flagRussia
Serbian-FlagSerbia
 GHD AG
slovakiaSlovakia
 WMS 1  WMS 2
sloveniaSlovenia
 ORD  THY  GEN
south-african-flag-largeSouth Africa
 Rare

Pituitary Community

Deaf Awareness Association of Faso (A.S.C.F)  (pending verification)

spain Spain
 TS ACHRO All Growth Addison NSRSS (yahoo) RSS SRS (facebook) Addison
Sweden
 NS All Growth  SGA
Switzerland-flagSwitzerland
 NS TS
Taiwan
RSS
Uganda
MAGIC-Uganda  AG
United Kingdom
ACH
usUnited States of America
AI Bloom Syn CAH CPP  CS  GHD children  GHD adults Hypophosphatasia ISS  IGFD  MASNoonans  ONH  PAN  RSS/SRS SGA  SOD   TS TSS TSGA  WS  NS-ORD CAH CPP   CS-Adults  CS Children  GHD children  GHD adults  HPP  IGFD   ISS MAS  NS ONH  PAN  RSS-english   RSS-SRS spanish   SGA  SOD children SOD/ONH Adults  THY  TS  TSS  TSGA  ORD-Hypophosphatasia

Global Partner World Alliance of Pituitary Organizations  wapo logo

Translate »