Patient Groups

This page is always updating. If you have a organization or social media group which supports endocrine patients, parents of affected children, or affected adults which is not listed, click here JOIN FREE to join our voices. Thank you and Welcome!

Click here for a Global listing of medical groups and facilities who specialize in endocrinology.

If you are interested in building a group or organization in your country where none exist, this basic guide may be helpful.

COUNTRY	Patient Organization / Associations	Social Media Groups   or click to see our You Tube Channel of Online Videos
Argentina	Williams Syndrome currently unavailable- please send updates to ContactUs@icosep.org
Australia	CAH  TS SSPA  PIT	PAN   THY    SRS   RSS AG
Austria	TS
Belgium	RSS (SRS)
Bosnia & Herzegovina	AG (email contactus@icosep.org for details)
Brazil		RSS (also known as Silver Russell Syndrome)
Bulgaria	AG	TS
Canada	GHD TS	GHD-English Adults-English AG-French RSS-SGA (French) Private RSS-SGA (French) Public
Chile		SOD/PAN/de Morsiers ;
China	GHD
Czech	WMS
Denmark	PIT TS	SGA
Dutch /Netherlands	CAH AI (Addisons) NS PIT SGA GH TS	PIT, PIT
Ecuador		TS
England & UK	CAH  GHD/RSS and ORD NS  TS PAN Restricted Growth (RG)   Addisons	GHD  SOD #1  SOD (#2)    RG
France	AG  SRS /SGA  ORD	SRS (Alice)   SRS Assoc
Germany	RSS/SGA/ACH ORD MAS   GHD/PAN THY #1  THY #2 AI  WMS   Skeletal TS	SRS (RSS) ORD
Greece		AG
Guatemala		AG and AG2
Hungary	TS
India	AG ORD-diabetes	AG
Ireland	TS Genetics    ORD	CAH  SOD
Israel	AG	AG
Italy	SOD SRS NS  GHD TS PAN SGA ORD General  ACHRO	SOD   SRS(1)     SRS(2) AFADOC Facebook LinkedIn YouTube   Twitter
Japan	TSS-Growth   Pituitary
Latvia	General, GHD
Lithuania	TS	TS
Macedonia	AG	GH
Mexico	TS
Netherlands	ORD  AI WMS
New Zealand	CAH	RSS/SGA
Norway	WMS TS	SGA
Pakistan		CAH
Poland	SRS TS	AG  TS   RSS/SRS
Portugal
Romania	Prader Willi Genetics
Russia	WMS
Serbia	GHD	AG
Slovakia	WMS 1  WMS 2
Slovenia	ORD   THY	GEN
South Africa	Rare Deaf Awareness Association of Faso (A.S.C.F)  (pending verification)
Spain	RSS/SRS TSA   ACHRO	NSRSS (yahoo) RSS SRS (facebook)
Sweden	NS	SGA
Switzerland	NS
Taiwan	RSS
Uganda	MAGIC-Uganda	AG
United States of America	AI Bloom Syn CAH   CPP  CS  GHD children   GHD adults Hypophosphatasia ISS  IGFD  MAS Noonans  ONH   PAN     RSS/SRS SGA   SOD   TS  TSS TSGA  WS  NS-ORD	CAH    CPP    CS-Adults  CS Children  GHD children    GHD adults  HPP  IGFD     ISS   MAS    NS ONH    PAN    RSS-english   RSS-SRS spanish   SGA    SOD children   SOD/ONH Adults  THY  TS  TSS   TSGA  ORD-Hypophosphatasia

Global Partner   World Alliance of Pituitary Organizations