Patient Groups are so important to ICOSEP.
We encourage any patient group to join and share the importance of good growth. If you know of an organization which is not listed, please contact us and let us know: firstname.lastname@example.org. Also, if you are interested in building a group or organization in your country, this basic guide may be helpful.
Click here for a a Global listing of medical groups and facilities specializing in endocrinology.
Abbreviations of some of the Groups of Medical Conditions Listed Below
AG=All Growth Conditions
AI= Adrenal Insufficiency ACHON= Achondroplasia CAH= Congenital Adrenal Hyperplasia
GHD= Growth Hormone Deficiency ISS= Idiopathic Short Stature IGFD=Insulin like Growth Factor Deficiency
MAS= McCune ALbright Syndrome ONH= Optic Nerve Hypoplasia PAN=Panhypopituitarism
RSS/SRS= Russell Silver Syndrome also known as Silver Russell Syndrome
SGA= Small for Gestational Age SOD– Septo Optic Dysplasia TS=Turner Syndrome